Serious Barriers to Care for Children with ME/CFS in the UK published this rather damning comparison of NICE recommendations when compared to what was actually delivered.  The headline observations included:

“National Institute for Health and Clinical Excellence (NICE) guidelines recommend referral to specialist services:

• Immediately if severely affected,
• Within 3 months if moderately affected
• And within 6 months if mildly affected.

However, the median time-to-assessment by a specialist service in the UK is 18 months.”

To read the overview go or for the full report go to

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