Australian Study Pinpoints Possible Gene Issues in CFS

A new Australian study has looked at nerve cell activity which regulate the flow of ions in and out of cells.  This is the first study which has looked at this activity from an ME/CFS perspective.

The ion channels ( TRP channels)  were recently called the “key transducers of nociception and pain”. (Neurons associated with the vagus nerve also contain many TRP ion channels.)

Read The Full Article by clicking here

The Origins of Fibromyalgia

The neurological basis for Fibromyalgia was discussed by Daniel Clauw, M.D., Professor of anesthesiology, University of Michigan at a plenary session address at the American Pain Society Annual Scientific Meeting on May 16 2015.  In the US, Fibromyalgia is the second most common rheumatic disorder behind osteoarthritis and, though still widely misunderstood, is now considered to be a lifelong central nervous system disorder, which is responsible for amplified pain that shoots through the body in those who suffer from it.  To read the press release please follow the link the prohealth.com.

New Study Identifies How Disbelief, Lack of Support Negatively Affects Fibromyalgia Patients

Results from a recent study published in the journal Arthritis Care & Research indicate that the construct of invalidation as perceived by patients with fibromyalgia includes active negative social responses as well as a lack of positive social responses with respect to the patient and their condition. In this setting, the psychological “construct of invalidation” indicates the perception that a person with fibromyalgia does not really suffer from any real, physical illness.

Read more on this external link

Chronic fatigue no bar to this high-achiever

This story from Wahroonga in New South Wales offers the possibility of positive outcomes:

“SHE regularly skipped classes and was lucky to make it to school two days a week but Alyssa Henry overcame chronic fatigue to achieve an outstanding ATAR of 99.85. The Northern Beaches Christian School student from Wahroonga has missed years of schooling since developing the condition when she was nine years old.  She did not attend Year 3, most of Year 8, or Year 9. But this gifted student took it in her stride, studying at home when she felt well enough. Alyssa, 17, was even able to skip Year 5 due to her academic results.”  You can read the whole story by clicking here

How to Exercise with CFS

This article provides sound reasoning as to why exercise is an important aspect of coping with CFS.

“Most of us with FMS and/or ME/CFS have been unable to maintain a regular exercise program. The problem is that with Fibromyalgia, lack of exercise can increase our pain levels while too much exercise or exercise done incorrectly can also increase our pain and fatigue.

In the case of Chronic Fatigue Syndrome or ME, as the body becomes deconditioned, the CFS worsens and as the CFS gets worse, it becomes more difficult to exercise leading to further deconditioning. The autonomic nervous system that is already not functioning well in ME/CFS becomes even more problematic with lack of tone in the legs and lower body. This lack of tone allows blood to pool and upon standing the blood does not get pumped back up to the brain efficiently. This can cause dizziness and faintness immediately upon standing, but can also cause problems as long as 15-20 minutes later. Exercise strengthens the lower legs and abdomen and doesn’t allow as much “space” for blood to pool and therefore prevents some of the dizziness and weakness that we may experience.”

To take a look at the full article follow this link.

Desire to Heal

CFS A Major Cause of Children Missing School?

According to research published in BMJ Open, undiagnosed chronic fatigue syndrome (CFS/ME) may be responsible for almost 1% of non-truant children who miss extended time off school. The authors state that earlier estimates, based on findings in just less than 3,000 pupils aged between 11 to 16 years at three secondary schools in the southwest of England, where specialist CFS/ME services are well established, have indicated that CFS/ME affects between 0.1 to 0.5% of children.

The study included children who had missed over 20% of schooling over a 6-week period, but excluded children who missed school for a defined episode of ill health. Over a 6-week period, 461 children had missed more than 20% of school with 3 children because of CFS/ME. The reason of absence for the remaining 146 children was unexplained. 112 of these children attended a clinical review at school, where two children unknown to the school, had already been diagnosed with CFS/ME, whilst 42 children were referred on to a specialist clinic, which resulted in 23 children being newly diagnosed with CFS/ME. The figures demonstrate that 28 of 2,855 children, i.e. the equivalent of 1% of the school roll who missed over 20% of schooling over a six-week period suffered from CFS/ME. For more information follow the link to Medical News Today

Could EMFs cause CFS?

Lloyd Burrell’s recent blog posting asks some interesting questions about the source of Chronic Fatigue and whether it may be linked to Electromagnetic radiation.  An extract is shown below to help you decide.

Robert O. Becker, author of Cross Currents, points out “chronic-fatigue syndrome has been found to be widespread in the electronics industry…

Ryoichi Ogawa, a physician in Kobe, performed a study on CFS and noticed that about 80% of his CFS patients were frequent users on a daily basis of cell phones, personal computers, TV games and other IT devices. He found that “Reduced cerebral blood flow may possibly result from the influence of electromagnetic waves from IT equipment

A 1998 study by Roger Coghill suggests that 50 Hz electric fields adversely affect human peripheral blood lymphocytes. He went on to note that “a decrease in human peripheral blood lymphocytes could be implicated in the development of CFS“.

Lucinda Grant in the The Electrical Sensitivity Handbook states “Other at-risk groups for developing Electro Sensitivity seem to be chronic fatigue syndrome (CFS) patients…. Because the nervous system is a primary site impacted by both chemicals and electromagnetic fields, those with nervous system damage from toxic exposures seem more susceptible to becoming Electro Sensitive too.”  Read the full article

Uplifting Story from Down Under

16/11/2011 and published by Triathlete.com –  Australia’s Nick North competes in triathlons despite being diagnosed with chronic fatigue syndrome. The last 12 months has ranked as one of the toughest periods Bathurst triathlete Nick North has had to endure, but on Sunday he was given a massive confidence boost as he works towards a very big goal.  Four months after North placed 24th in his age group at the 2009 Triathlon World Championships as he wore the green and gold of an Australian representative for the first time, the promising triathlete was diagnosed with chronic fatigue syndrome.  It meant he was unable to keep training as he had been and prevented him from racing. Both physically and mentally it was a tough time for North to endure.  To read the full story click here

Chronic fatigue syndrome eased by cancer drug

Dr Richard Fuller from the Dove Clinic commented on a New Scientist article relating to trials with Rituximab. This is interesting research. It states that some people who underwent treatment for cancer using a monoclonal antibody that blocks CD20 on B cells of the immune system (usually used for lymphoma) could benefit from improved symptoms of underlying chronic fatigue syndrome. The same treatment has also been shown to benefit some people with auto-immune disease.  At this stage more work is needed to define why this works. It has long been held that Chronic Fatigue Syndrome relates to a change in immune function which may have knock on effects on the body. If the mechanism can be more clearly defined then approaches that resolve the trigger for the immune response may be discovered rather than relying on medical strategies to suppress immune function, as these inherently cause other health problems.

Serious Barriers to Care for Children with ME/CFS in the UK

Prohealth.com published this rather damning comparison of NICE recommendations when compared to what was actually delivered.  The headline observations included:

“National Institute for Health and Clinical Excellence (NICE) guidelines recommend referral to specialist services:

• Immediately if severely affected,
• Within 3 months if moderately affected
• And within 6 months if mildly affected.

However, the median time-to-assessment by a specialist service in the UK is 18 months.”

To read the prohealth.com overview go prohealth.com or for the full report go to biomedcentral.com